It was so good to see William today after not being able to come up the day before. He had a little bit of a hard time breathing last night so they put him on oxygen to help the flow. They are a little worried about his PD line (chest tube) because it is still draining more than they would like. They tested the content and the results said that urine was in it. They thought the drain may have moved and hit the bladder. We later found out that that was not the case but they said they weren't too worried about it unless it doesn't slow down in the next couple days. They plan to do a heart cath on Monday.
Tonight was a bit frustrating. The staff at Primary's has been so sweet, helpful, caring, and willing to answer any of our questions - as dumb as some of them were. They never made us feel stupid as we tried to understand everything. But tonight the nurse was not friendly at all and wouldn't answer any of our questions. William started to cough and asked her if that was normal for them to do after getting off the ventilator and she responded in a very rude way with,"He coughed......babies cough!" I felt so stupid. My son did just go through open heart surgery and if he were to get sick it could be very bad! We tried to ask more questions about how he did that day and what the plan was and we couldn't get anything out of her. I was so upset as I wasn't able see William the day before and wanted to be up to date with everything going on and she was being so rude. We sat there quietly for the rest of our visit.
On a good note, they put this mobile on his bed and he loved to watch it and hear the music.
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