Friday, Feb 1, 2013:
Today we got to bring our sweet baby William home!!!!! He came home on the feeding tube, 1/2
L of oxygen, and a telometry montitor. The telometry monitor are those three (can only see two) big stickets on his chest connected to the wires. This monitor recorded his heart rate and sinus rythmn. The monitor would talk to a cell phone that we kept close to William and that cell phone would send the live data to a hospital in Sandy. So William was being monitored by a hospital 24/7. We knew that William at some point would need a pace maker - it is very common with his defect to need one and with his heart rate dropping days before they wanted to monitor it over the next month to decide when.
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